Is Hashimoto’s a Surgical Disease? you should know

I recently learned that Dr. Ivan Guldvog, a surgeon in Norway is conducting a clinical trial on the effect of a total thyroidectomy for people with Hashimoto’s. A total thyroidectomy is a complete surgical removal of the thyroid gland. This procedure has traditionally been performed for people with Graves’ disease, large goiters, and for people with thyroid cancer, and results in a lifelong need for thyroid medications. (1, 2)

The procedure, like any surgical procedure, has many risks including bleeding, infection, a permanent hoarse voice, airway obstruction, and damage to the parathyroid glands, which can lead to hypoparathyroidism, a condition that can result in dangerously low calcium levels (hypocalcemia). A UK physician made headlines in 2015, speaking out about her life-threatening post-surgical experience with hypocalcemia. (2, 3)

Dr. Guldvog has performed 97 total thyroidectomies for patients with Hashimoto’s, and has reported positive results to date, most significantly:

  • The percentage of those reporting severe fatigue was reduced from 84% at baseline to 34% at 18 months.

  • Levels of TPO antibodies (thyroid peroxidase antibodies, the main antibodies found in Hashimoto’s) fell from 2,500 units/L to <500 units/L in the surgery patients versus about 3,200 units/L to 2,500 units/L among the patients treated with medications.

I had mixed feelings about this study, as a part of me was happy to see that Hashimoto’s was getting more attention from conventional medical physicians and that awareness around the struggles of patients with Hashimoto’s was increasing.

Dr. Guldvog has said “The fatigue experienced with Hashimoto’s disease is debilitating. People can’t work. Their quality of life is very poor. Medical treatments fail to relieve all the symptoms, but complete surgical removal of the thyroid appears to be curative in most cases. Hashimoto’s isn’t a disease that you die of, but it can make your existence miserable.”

I was also happy to see that this particular doctor was thinking beyond synthetic thyroid medications and focused on thyroid antibodies, when he stated “Thyroxine does not normalize symptoms or anti-thyroid peroxidase levels” during his presentation at the 2015 International Thyroid Congress.

However, I was also disappointed and concerned that thyroidectomy would become a standard recommendation for Hashimoto’s.

When I was a young pharmacist, I worked on a multidisciplinary team with a wonderful group of healthcare professionals: physicians, nurses, psychiatrists, psychologists, social workers, behaviorists, dental hygienists, occupational therapists and many others. This was before I knew I had Hashimoto’s, and during the time I was suffering with a horrible chronic cough (among many other mysterious symptoms). The cough was painful, uncontrollable, and sometimes resulted in me vomiting.It kept me in a constant state of worry. You see, it would pop up at very inconvenient times: like in the middle of the night when I was sleeping, and I would wake up choking, or in the middle of a presentation or work meeting, and I’d have to run out of the room and vomit into a garbage can… not pretty, I know.

I saw multiple doctors, had a battery of tests and tried every drug that was prescribed to me, from antihistamines to anxiolytics to acid blockers (this was after I had already tried every over-the-counter option). But the cough persisted, and now I had a cough, and medication side effects.

The only thing that seemed to help was taking a narcotic cough suppressant; phenergan with codeine. But I could only take it sometimes – codeine can be habit forming, and as a pharmacist, I knew that very well. And although I had a valid prescription for the cough syrup, I was also concerned that I would test positive at a random drug screen at work. It would be very awkward to explain to my boss and HR why I came up positive for a narcotic!

When I did take the cough syrup, I could only take it at night, because it made me too woozy during the day, and then I always felt hungover in the morning. So I saved it for emergencies.

I was desperate, and would have done anything to get rid of the cough. I once joked with my colleague at work that I was even willing to cut off my head if that would make the cough go away.

I thought that perhaps my tonsils were part of the problem. They always looked swollen and inflamed and I had read about tonsils contributing to a chronic cough. So I consulted with a surgeon to ask if my tonsils could be  a possible cause of my chronic cough. He said it was possible, and offered to take out my tonsils. But then I learned that a few months before I started my job, a social worker who had worked at the very center where I worked had died as a results of a tonsillectomy. She was in her 20’s (like me), and the people that knew her said she was one of the kindest souls they’d ever met. Her tonsillectomy was supposed to be “no big deal”, but she suffered from uncontrolled bleeding and was only found by her family when it was too late.

I was conflicted and didn’t know what to do. I wanted to get rid of the cough and the surgeon seemed trustworthy, but I was scared. I spoke to one of my physician colleagues, and she said something very wise that I will always be grateful for: “If you consult with a surgeon, there’s a good chance that he’ll recommend surgery. When your main tool is a hammer, everything becomes a nail. Don’t be so quick to part with a body part. You have tonsils for a reason”.

 Her advice, and the tragic passing of the young social worker I never got to meet, solidified my decision against getting a tonsillectomy. And guess what? My chronic cough is long gone (almost 5 years), and I still have my tonsils. For me, eliminating dairy and gluten vanquished the cough within three days. I had suffered from it for 3 years, and thought I had tried ‘everything”!

And guess what? The same interventions also reduced my fatigue and thyroid antibodies.

Over the last seven years of researching Hashimoto’s, I’ve identified over 28 unique ways of reducing thyroid antibodies, and over a dozen methods for overcoming thyroid fatigue!

For some people, getting off gluten and dairy will completely reverse Hashimoto’s and its symptoms. For others, more interventions are needed, such as an autoimmune diet, treating infections, supporting the adrenals, healing the gut, addressing nutrient imbalances and getting rid of toxins. There are also supplements and medications that can suppress autoimmune symptoms and thyroid antibodies. My favorite supplements to use for reducing antibodies are Wobenzym or systemic enzymes , and I’ve also seen miraculous results with the use of low-dose naltrexone for autoimmunity.

Sometimes overcoming fatigue is as simple as taking one supplement, in the right dose. I’ve received so many thank-you notes, and random people have even given me hugs at conferences, after reading my article about Thiamine and Thyroid Fatigue.